FSHD Global Research Foundation

As someone who suffers from this disease I have relied on this organisation for hope through information they provide. They have fought an uphill battle very much alone when even the Australian government refused to chip in a cent. I honestly wouldn't be alive today if my mother hadn't found and connected me with fshd global. The fact that they focus on a cure and they don't waste a cent. It's remarkable that such an organisation exists. It's a shame that so few people know it even exists. Thank you for giving me a reason to give life another chance. Even if it's frustrating and depressing. It's somehow worth it for the good parts.
Feb 29th, 2020

Apr 21st, 2019

Fantastic organisation supporting a relatively rare yet, important and underserved condition. Awarded Australian charity of the Year for their outstanding funding model - ensuring 100% of charitable donations to go to support the research - and accountability feedback systems to donors.
Jul 29th, 2017